There are so many things wrong with the way endometriosis is treated in every sector. These issues are systemic, but how do I fight them? My last hope is to document my experience for a few reasons: for those who unfortunately relate can find solace in the understanding, for those who cannot relate to find some understanding, and for my peace of mind; because I have nothing left.
I will preface by saying that I do love prose and I am dramatic. Believe me when I say that my pain is never exaggerated. I use hyperbole for humorous purposes and I use flowery language to paint a picture for you. But never will I mislead or exaggerate the pain that comes from living with endometriosis.
A few years ago at my small hometown college apartment, things went terribly wrong. I always had bad periods, I always had random pain. Due to living in an impoverished city with little money for copays and little support due to my own teenage angst, I left those pains to coincidence. At around 19 to 20, the pain was screaming to be noticed. It would not be ignored.
Everything hurt. Every joint, from my ankles to my neck, seared and pulled as if they were being removed from me, no longer a part of my body. My pelvis was filled with hot spa stones and burning coals. I could not leave my bed for days at a time.
I was told my levels look fine every single time.
Many doctors, appointments, referrals, medications, years, and a surgery later, they finally confirmed endometriosis. I was told the diagnosis would open up a myriad of possibilities for treatment and that the excision surgery would finally bring relief.
It has been 10 months since the surgery and I am dying. I cannot get out of bed. I am so weak, it felt like my arm broke when I picked up a ream of paper. Which is 5 lbs. at best.
I have a specialist appointment but I’ve read the research and there fucking is none.
chronic-illness comedy depression endometriosis family hardship health illness life love mental-health sadness sickness tired wander wellness womens-health writing
endoreality 
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